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Familiar to (chronic) pain all to well this is a theme close to my heart. I had times when I cld hardly make it down the stairs, and I felt so useless and in despair. At times I cldn't even press down the buttons on my camera - and find joy in making photos hoping they bring joy to others. So with this composition I try to show both sides of FM, and all others chronic deseases that can befall joints and restrict movement. We all want to move like a butterfly, yet parts of our insides are hardened and cracked, making us feel like wearing a plaster. On good days we can rise above that and don't feel as much pain and we can fly high, yet the shadow lurks inside, ready to attack at will (or so it seems). On the bad days we are confined, restricted and some of us even bedridden. It is not only tough for us, but also for our loved ones, can we never ever really plan things in detail. Pls remember though: our minds are free, and they can fly high and easy as butterflies, even in the darkest moments.
For 'Smile on Saturday'
www.cdc.gov/me-cfs/awareness-day/index.html
Feeling Blue for You.
History of May 12th
This year, 2025, marks the 33rd year for International Fibromyalgia Awareness Day.
[excerpt] …Despite the efforts of a number of dedicated groups and individuals, there are still vast pockets of ignorance and misunderstanding about fibromyalgia. To this day, many patients are faced with medical establishments, governments, family and friends that knows very little about this condition and are threats to human health. It is therefore crucial that all those who are affected by this illness, including family, friends, caregivers, etc., make their voices heard all year round, but especially on May 12th of each year. – Thomas M. Hennessy, Jr. (1954-2013), RESCIND, Inc
We hope it will inspire you to do whatever you can to help spread awareness and make May 12th a day to remember.
fibrocanada.ca/en/may12th-history/
Taken on film.
' [...] I'm living in a kind of daydream
I'm happy as a king
And foolish though it may seem
To me that's everything'
www.youtube.com/watch?v=UGBBmUHlPKg
__________________________
Linking beauty with love
Beauty will save the world
put a wise teacher in the mouth of an idiot
Beauty transcends aesthetics
Makes us dream and hope
The Self is healed
with the bandage of metaphysical rupture
Moving and connecting
The idea that creates the sculpture
Inseparable from flesh and spirit
Mediating between the two
A paradox that forms the basis
of our dignity and freedom
Yes, maybe I'm sabotaging myself
But beauty makes me tremble back
The spirit kneels before this height
The reasonable is bent by spells
An inner worship to preserve
the sublime vision of the beloved
It connects everything beautiful
under one name
Linking beauty with love
[Gökce, Elvin Karda, written in May 2024]